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Welcome to Wilmstumour dot com
We are a family who have been touched twice by Wilms tumour and wanted to have a place to share the information, resources and stories we have encountered on our journey.
We have gathered many resources here that we hope will be of as much use to others as they have been to us.
This is NOT a medical site. Please read the site disclaimer.
The navigation bar across the top of the site will connect you directly to the various pages within this site listed here.
Information:
What is Wilms? - brief explanation
Treatment - breakdown of staging and histology
Genetics - information regarding genetic aspects of Wilms
Nephrogenic Rests - info
Coping - tips and suggestions on what to do after diagnosis
Contact Us
Resources:
Books - books that may be useful and informative
Organizations - Organizations related to Wilms, cancer and wish-making
Internet Links - support sites, medical sites, online articles, other
Online Support - links to e-mail support groups, discussion boards
Warriors:
Personal Stories - list of personal websites of folks dealing with Wilms
An e-mail discussion list has been created on ACOR.org for caregivers of children with
Wilms tumour called Wilms-Kids. If you're interested in meeting and talking to other folks who have dealt with (or are currently dealing with) Wilms tumour you can sign up at the following url to join an email support list called Wilms-Kids:
http://listserv.acor.org/archives/wilms-kids.html
Wilms-Kids listmembers can add themselves to the listmember database at:
Wilms-Kids Members
We've also recently created a wiki that folks can browse or add info to:
Wilms-Kids Wiki
There is also an e-mail discussion list on ACOR.org for long-term survivors of cancer [all kinds] where folks can discuss various issues that come up in life after cancer.
You can sign up for the LT-Survivor list at:
http://listserv.acor.org/archives/lt-survivors.html
Please support childhood cancer research. Donations can be made to CureSearch and if you want your donation to go to Wilms research specifically, you can request that the money go to the Wilms Initiative (otherwise, it will go to childhood cancer research generally). At the moment, donations can be sent by mail to:
Betsy Mowell
CureSearch - Wilms Initiative
4600 East West Highway, Ste 600
Bethesda, MD 20814-3457
Or call 1-800-458-6223
Donate to your local Children's Hospital. Volunteer your time to one of many organizations that assist people dealing with life threatening illnesses. Give blood.
Every effort helps.
There is an image of a rainbow on this site to remind us all that storms don't last forever.
Submissions, suggestions, links and comments for this site are always welcome!
Site updated February 7, 2007.
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